Friday, March 18, 2011


March 18th, 2011

Everyday comes with a new challenge. Although I love my pink finger nails, lips and toes, a healthy glow of color in my face and of course having to not wear oxygen, it's also not all a walk in the park. Today in pulmonary rehab I weighed in at 114Lbs. I don't think I have ever weighed that much in my life. I was surprised considering I weighed 106Lbs on Tuesday, but went about my day not thinking to much about it. Later this afternoon Dave, me and the fam went for a ride in the car and before I knew it my ankles started to disappear. I got scared and started to cry. My first thought was the prednisone was making me retain water. I called the lung transplant coordinator to have her call the doctor to confirm that: "it is normal for prednisone to start giving you a moon shape face and pretruding belly." My doctor said she expects this to happen in all her patients and she actually had noticed my face looked fuller in clinic today; so nothing to worry too much about. My initial worry was that my lungs could fill with fluid and it would start to hurt my joints so I would have to eliminate my physical activity. On the brighter side of things everyday gets better, I seem to be moving air through these lungs more easily. I've started thinking of and doing more stuff thats normal, like writing birthday cards and wrapping presents and makeing sure the kids are fed, washed, and not too loud. As for recovery, it's only for a season.

5 comments:

  1. You are an inspiration! We are happy for all of you.
    Don Nicoll

    ReplyDelete
  2. Julie, we have been praying mighty prayers for you. So happy to see you doing well! We will continue our prayers and gratitude!
    Keep healing and knowing that you are in our prayers.

    ReplyDelete
  3. Dave and Julie this is Heather Staley, I just want you to know I am so happy for you guys and have been thinking about you guys. I have been following your blog and really admire all that you been through. I can's wait to see both of you at the benefit it has been a long time. I know this is a little late in the game but please reach out to me at any time if their is anything I can do 801-971-0313.

    ReplyDelete
  4. Love hearing all of the progress updates. Each day seems to be a wonderful step towards recovery and a healthy, full and happy life. Love you! Keep up the posts.

    Bekah

    ReplyDelete
  5. I hope you don't mind me blog stalking you, but I found your blog through my cousins, Jen and Matt Meese. I just wanted to say that prednisone sucks and I had the exact same problem with it several years ago when I was on it for my asthma. I hate the pictures of my "moon face" from that year! I was so relieved to be off the predinsone.

    I wish you well in your recovery!

    ReplyDelete