Monday, May 30, 2011

Thank You

I want to thank Paul Cardall along with all the other talented artists who performed the night of my Silent Auction/Benefit Concert. Thank you to Steven Sharp Nelson, Marshall McDonald, Charley Jenkins, Ryan Stewart, Ellee Duke and Peter Breinholt.  We appreciate all your support and donating your time to help in my behalf. The night really was a memorable success because of all of you.  We can't express enough the gratitude felt that night, it touched us to our very core.

We want to send a special thanks to all of those who donated and supported us. We realize the selfless sacrafice it takes to serve someone else and sometimes it's not easy.
We love you.
Thanks again,
Julie and David Hendrickson

Monday, May 16, 2011

Julie's Running with the family

Julie and I decided to go up to the new trail above Tanner park on 2700 E. on Friday night. We started out just walking up the new paved trail. Every few minutes I would ask her if she wanted to go down below to the river, or if she was doing alright. She would just reply simply, 'No lets keep going.' Before we knew it, we were at the bridges that go over I-215 and I-80. By that time, she had a bit of a side ache. I told her, "If we go over these two bridges and up that hill over there we will have walked all the way to Wasatch Blvd." 'Let's go.' So up we went to the top.

This was the first walk of its kind for Julie and I and the boys. Any other walk would have accommodated and oxygen tank on wheels, and would have been much shorter. To my surprise, after taking a few pictures of her and the twins, she asked, 'Should we run back?' I had to act non-chalant and act like I wasn't just blown away. It was incredible to me that I watched my wife truck it up about 2 miles of uphill trail. To hear her suggest we jog back was invigorating. I found myself holding back emotion as I thought of how proud her father would be as soon as I sent him the shaky video of her running as I run beside her. This picture above shows how she just kept motoring along.

Julie had been postponed at rehab that day and she left irritated that they moved her time without telling her. She was really looking forward to hitting the milestone 15 minute run in. I think she had it in her mind she was going to run when we started the walk. When we got close to the end, she realized she had set her glasses on the jogger at the top. We had to get back and drive to Wasatch before it was dark. Luckily they were right there next to the curb at the top where we took a picture of her. On the way home she asked me if I was going to run in the morning. She wanted to join me and we called her Dad to come along. She told me she wants to do something amazing 2 months post op. I told her, "You just did!"

Saturday morning we hit the pavement and headed to Sugarhouse park. What was really cool was to see her exceed the limits she had mentally put on herself by running on the treadmill. I had a Garmin GPS with me and I told her her pace was much faster than she was used to. To her surprise she was feeling okay. That being said she immediately toned it down to pace herself. As I ran along side her, within a minute or so she was back to the pace she was at before. So much of exercise and what we do is limited by what we think we can do. I was simply amazed at what I was watching. She has amazing drive!
Look at the smile on her face! She initially told me in the hospital that she didn't want people in rehab asking her when her first race was going to be because she didn't want the pressure. At that time, I don't think she had any idea the amount of energy and ability she would shortly have. I am so proud of her and her hard work. Nice job Jules!

It is very motivating to see someone take full advantage of what is so selflessly given to them. It is at times like these that I can't help but think of the selfless donation one decided to give when they had no intent of dying soon. This donation of life is truly that, a new life for my wife and family that we otherwise would not have without organ donors. THANK YOU!!

Monday, May 9, 2011

Photos of Julie's life as a mom before transplant.

Julie was on cloud nine when our boys were born. This first pic was in January when they were one month old. Notice the oxygen cannula next to Jacks head.

This was the first hospital stay after they were born. They were two months old. This was typical to bring the boys up to see Julie, feed them, and even create a make shift bed on the floor with a mattress so they could nap.

This was during the summer of 2009. Again look at the joy she has on her face. She loves being a mom to these boys.

The pictures below are during a hospital stay in August of 2009. Julie is always taking care of them!


This was another hospital stay on a walk with the boys.

Summer 2010 watching a movie with Ben and Jack...most likely a Pixar.

Lake Powell next to the house boat with the oxygen "ball and chain" tubing. We talked about this possibly being the last time we could go down with her health declining.

We made it to Newport in the fall to take the boys to the beach. The satchel on Julies shoulder is a portable oxygen concentrator. Much like the picture below, We tried to get as much in last year as we could.

Julie insisted we make it to Small World, I insisted on Autopia, and they were fortunate enough to get suckers the size of their heads because that is something Julie remembers most about Disneyland.

Still being a mom despite going in and out of the hospital. This is a great picture depicting how happy she was last year. She will sit with them and admire them as she teaches them how to eat.

Anyone who knows Julie, knows how much she loves Halloween. She goes all out and orders costumes for them 2 months before.

See what I mean...She was Stawberry Shortcake.

Julie discovered that Jackson wanted to eat his yogurt by himself with a big boy spoon. You can see the pride in her eyes.

And then the call came. We rushed to the hospital wondering what was going to happen in this crazy process. We were thinking of the donor family and what agony they might be going through. We had peace about Julie and the outcome that was to be weather good or bad, and prayed that the donor family would feel the same peace we felt.

These pictures were early in the morning after pulling an all nighter as we got news that she was off bypass and we were through the worst of it. What a relief but still intense as she wasn't closed up yet...

Day ONE, Sunday March 6, 2011

Day TWO, Just 24 hours after getting out of surgery she was walking. When they extubated her, she immediately sat up in her bed.


Day FOUR, Looks comfortable right? These are the chest tubes for drainage. That is 3 of the 5 that were in her. That is what limited her breathing the first few days.

Day FIVE, she's getting her attitude back, "What are you doing??" I cheered her up by taking her to the cafeteria and getting some onion rings.

Day SIX, IV pumps are depleting along with tubes.



Day NINE, Oxygen hung up.


I planned on doing this for a long time, so here it is a picture time line of the life before transplant and the fight that brought her back so quickly. The day by day is so telling of her determination and fight. She is alive today because she can be a "pain in the butt." She knows that if she has to be this way to get prescriptions filled, take her meds on time and work relentlessly at her workouts. She is THE MOM!! We are so proud of you and so happy you are fighting to be here. We love you Julie!

Friday, May 6, 2011

The Morning Show

These last couple weeks have been rather hectic.  Dave was out of town from Wednesday through Monday last week on business.  The good thing about him being gone for that long is he was awarded Golden Kiwi, one of the top sales reps of his company (Fisher & Paykel Healthcare).  What that means is an all expense paid trip for he and a guest (me/wife) to Laguna California at the St. Regis Resort for 4 days.  We are so excited; We need this trip. I was proud of him winning this award in spite everything he has been through this year.  I am really so proud of him.

Yesterday morning Dave's cousin Paul Cardall and I were fortunate enough to be guests of the 'Radio from Hell' morning show with Carry Bill and Gina on X96.  It was fun and also nerve racking.  Paul is so good at that stuff.  I just kinda followed his lead.  People called in and there was one guy, Glen in particular who called in and asked me a couple of questions.  I didn't get a chance to answer his question completely.  I wish I could have talked to him longer.  I remember he was 21 and has CF and wanted to know more about transplant.  If you are the young man who called in this morning and read this blog, please don't hesitate to ask me questions.  I am more than willing to talk to you and I know you will know what Creon 20, PFT, and FEV1 are.  Everyone seemed to be confused.  Basically, it would be nice to talk to you and not have to spell everything out.  When you said you had been in the hospital recently and the Docs had mentioned transplant to you a couple times, I wondered if your doctor is Dr. Liou.  Because if it is, and he has mentioned transplant, you should probably do the work up.  Dr. Liou wouldn't just throw the idea around lightly.  Dr. Liou has also written one of the top papers on this matter specifically.  It's a ten page model on when CF patients should get sent to transplant.  Nearly the whole country uses some form of this model that the UofU created.

To hear the podcast go to:
Click on May 5, 2011 Ask a heart/lung transplant recipient