Saturday, January 31, 2015

Happy Anniversary...sort of

On Wednesday, we met with Dr. Cahill, Julie's lung transplant doc and she informed us that there was a possibility that the tumor was a result of having EBV (Epstein Barr).  In that case, there is no chemo and the surgery to remove it is all that is needed. We were discharged from the hospital Thursday morning.  All in all, Julie is recovering very well eating solids Wednesday night and feeling just some of the effects of being intubated (Horse voice, with a little chest congestion).  Her CT scan was clear other than the tumor that was removed.  We had a lot of peace on Thursday even though the looming possibility that we would be undergoing more treatment.  The peace is something I can thank others for.  We have had an outpouring of love and support.  People of all backgrounds have kept Julie in their thoughts and prayers.  As I have said before, she and I can feel it.  It is a real power that we cannot deny.  We may be jaded from the past and that curbs the emotional reaction one might have, but we are still human.  Yet we have been able to really see things as they are in front of us and not dwell too much on what is currently unknown and out of our control.

Yesterday was our 8 year anniversary.  It was met with some preliminary results that were not welcome.  The tumor was malignant and pathology is still determining exactly what type of treatment will be best; We will go to Huntsman Cancer on Tuesday for a consult with an oncologist who works with most all of Cahill's transplant patients.  We were told they will do a PET scan at some point.  PET scan is a little different than an MRI in that a radioactive material (tracer) is injected to see where it collects so the radiologist can see areas of concern with more detail.  Most likely the Lymphoma is Post Transplant Lymphoproliferative Disease or PTLD.  We are still optimistic since the surgeon said the liver was clear and everything around the site looked "clean."  In addition,  her blood is taken regularly to detect cancer and nothing has shown up.  The CT scan done in the ER last Monday was clear. Lastly, the tumor is gone, out of her body and she feels much better than she did.  Frankly, Julie just wants to be able to still go on our trip to Hawaii next month...cross your fingers.

1 comment:

  1. You guys are an amazing family! Wishing you all nothing but the best!

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